There’s nothing funny about autism.
Wait a minute. Yes, there is – especially when Chris Long tells the “boob” story.
But let’s back up.
In February, several Kansas City, Mo., area parents – coached by local comics – practiced routines about the humorous side of living with autistic kids. They were preparing to take the stage for real at the Mission Theatre for the all-in-fun, over-21 autism fundraiser “An Evening With the ’Rents,” (short for parents). The show benefits Camp Encourage, a local summer program for autistic kids.
As music played, Long walked to the mic in a lime-green hoodie. She told a story about visiting McDonald’s with her husband, Scott, and their 11-year-old autistic son, Dakota. Although Dakota doesn’t talk, Long explained, he does love to rub people’s skin.
“He’ll rub your arms or your back,” she said. “Any warm skin. He just loves it. So we’re at McDonald’s (Play Place) and he’s doing great. But pretty soon he starts rubbing this lady’s arm, and she’s turning redder and redder.
“It’s summertime, and she’s got this huge chest, and a very low-cut top. And he just reaches in and grabs this woman’s boob. And he just starts rubbin’ … and I don’t know what to do. I’m like, ‘Scott?’ And he’s like, ‘What? You want me to go grab the other one?’ ”
The dozen or so people in the room exploded with laughter. A smiling Long took it all in.
“Note to self,” she seemed to be thinking. “The boob joke kills!”
Except it was more than just a joke. It’s was one of the many frustrating, and often humorous, realities parents have to deal with when living with a child “on the spectrum.”
Autism – known as a spectrum disorder – affects 1 in 88 people, and 1 in 54 boys. No two cases are exactly alike.
“People with autism just process the world a little differently,” said Keenan Stump, a therapist who works with autistic kids in their homes.
The disorder often impairs judgment over what’s socially acceptable.
Stump, 37, an adjunct professor at Rockhurst University, got the idea for the comedy night after hearing parents share funny stories at another fundraiser.
“By the end of the night my wife and I were in tears,” he said. “It’s absolutely cathartic.”
He persuaded a handful parents of autistic children to overcome their stage fright, then got local comedians to help focus their material and hone their delivery.
“How many fundraisers do you go to that are a walk?” he said. “I don’t have anything against those, but it could be a lot more fun when people are swearing and drinking booze.”
The show’s headliner was Lou Melgarejo, a Chicago blogger who won the 2011 “Speak Out” award from Autism Speaks, a national advocacy and awareness group. The yearly award honors those who go above and beyond in promoting the organization.
At rehearsal, as the next parent waited her turn, Stump grabbed the mic.
“All you have to worry about tonight, really, is just getting a feel for being up here, walk around, test it out, grab the microphone, pace if you want. … There are lights on, and people will be staring.”
“I’m really nervous right now,” said Olivia Cytrynowicz, a Hallmark greeting card editor whose 4-year-old, Otto, is autistic. “I’ve coined a little phrase for how I feel. It’s called … pee-vomit. I could pee my pants or puke right now.
“But I figure this is the crowd I could probably do that in front of and it wouldn’t be too shocking, right?” (Some autistic children have gastrointestinal issues, and many have problems learning to relieve themselves appropriately, parents said.)
“OK. A little bit about myself. I grew up with a nonverbal autistic brother. His name is Roger. In a time when people really didn’t know what autism was … I’d say, ‘Don’t make fun of him. He’s autistic.’ And they’d say, ‘Artistic?’ No. No. No. Autistic. So now, being a mother of a 4-year-old son with autism, it is so gratifying to live in a time when people know what autism is, and we can get together and support each other in a night of love and laughter.”
“Hear, hear!” someone shouted. “Yeah!”
“You know you’re an autism parent when you own cleaning products with names like Urine Destroyer,” she said. “It really works. I should know because my couch is coated in it.”
“You know you’re an autism parent when the school calls to let you know that your autistic child pushed another child over a toy, and you’re so so flippin’ excited that your kid initiated play with the other kid, you almost forget to ask if the other kid’s OK.”
After many laughs, she ended on a tender note.
“You know you’re an autism parent when it takes a lot to shock you or surprise you or freak you out. But it takes very little, like appropriate eye contact, an initiated conversation or an ‘I love you, Mom,’ to melt your heart.”
Stump can hardly believe the improvement.
“To see these parents transform into comedians, instead of just a mom telling a story, is mind blowing,” he said. “The delivery, the timing, the little gestures. It’s like they’ve been doing it their whole lives.”